We are HOME!! This is my second day home being a mother of 3. I really can't believe it. Really it's not much different from being a mother of 2, other than it is a bit harder getting Hyrum out of his crib while also holding Eliza. Eliza is doing fantastic and has even allowed me a few hours of sleep each night. She was sent home with some oxygen for emergencies and an apnea machine to use at night for my peace of mind. Other than her having to choke down 3 awful medications in the morning and night, she is a pretty normal baby. She sleeps and eats a lot. The boys are aware of her but don't exactly care at this point. Joseph wants her to start crawling and loves when her eyes are open. Hyrum spent a good 15 min yesterday just staring at her in the swing.
I was just staring at Eliza yesterday and I started to feel a little emotional. I told Jason that I feel like this whole experience has robbed me of enjoying this newborn stage. I worry a lot! Everything she does I question if it is "normal" even knowing that it is exactly what my other newborns had done. As much as I love her being cute and tiny and can hardly wait to get past the trauma of the first two weeks of her life.
On Tuesday we have her first neurology appointment and I think Jason and I are equally excited to talk about getting Eliza off some of the crazy medications she is on. The list of side effects of the medications are very alarming and we hope to eliminate at least one of them, if not two. Jason has been doing some major research and he is pretty confident of what Eliza has and we will bring that up at her appointment as well.
I am so grateful to be home with my whole family. I know that this situation could have been so much worse and I know that we have been incredibly blessed.


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