Miracles continue to flow. We are now on day 4 of no seizure activity (even according to the EEG test)! She has that silly electrode cap off and I get to see her cute little head with pretty red hair again. Because there is no known seizure activity we were able to adjust her meds a little and start bottle feeding today. She is doing great! Our next challenge is for her to take her medications by mouth. We started that today also but she hates it and literally gags with every micro drop (it is actually comical). She has three medications that she has to learn to choke down before they will let us go home so I'm hoping she gets over it quickly and just takes them. If all goes well she will get the tube out of her nose and intestines tomorrow (it has been left in because it is a way for her to get the oral meds without actually taking them orally). Tonight she choked down two of the meds after about 30 min. I had the nurse give her the third med via the tube (NJ tube) because I didn't want to stress her out any more than I already had. Tomorrow morning we will try again.
I got to get out of the hospital for awhile today to spend some time with the boys. It does my heart good to do normal stuff. I can't believe how much they have grown up in the 10 days Eliza has been in the hospital and I have been away. In a way it makes me sad, but I am also so grateful that they are strong boys and have learned to cope in a good way. Joseph is absolutely ready for us to come home though and I'm sure Hyrum feels the same even though all he does is give me this look of disgust when he sees me. Haha, that boy has serious attitude!
Life is great and I'm so glad my little fighter girl continues to fight. If all goes well we should be home in a few days!
Life is great and I'm so glad my little fighter girl continues to fight. If all goes well we should be home in a few days!
Book of Mormon - Moroni 7:37,42-43
37 Behold I say unto you, Nay; for it is by faith that miracles are wrought; and it is by faith that
angels appear and minister unto men; wherefore, if these things have ceased wo be unto the
children of men, for it is because of unbelief, and all is vain.
42 Wherefore, if a man have faith he must needs have hope; for without faith there cannot be
any hope.
43 And again, behold I say unto you that he cannot have faith and hope, save he shall be meek,
and lowly of heart.
Today I am not only grateful for the many miracles that have taken place and continue to flow, but I am also grateful for Jason as my eternal companion. It is hard to find words that give my feelings for him justice. I couldn't imagine any journey without him, let alone these crazy few days. In my darkest moments he has been by my side bringing light and life back in. He has a special connection with our Heavenly Father that blesses our family continually. He sees things in a way that brings me hope and understanding of things unknown. He is a man of strength. I know this experience has been a major struggle for him, but he some how holds it together and his faith has never faltered. I am grateful for this man, who has carried my faith lacking mind to higher ground and has reminded me that faith brings about miracles.
Today I am not only grateful for the many miracles that have taken place and continue to flow, but I am also grateful for Jason as my eternal companion. It is hard to find words that give my feelings for him justice. I couldn't imagine any journey without him, let alone these crazy few days. In my darkest moments he has been by my side bringing light and life back in. He has a special connection with our Heavenly Father that blesses our family continually. He sees things in a way that brings me hope and understanding of things unknown. He is a man of strength. I know this experience has been a major struggle for him, but he some how holds it together and his faith has never faltered. I am grateful for this man, who has carried my faith lacking mind to higher ground and has reminded me that faith brings about miracles.


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