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Eliza had her appointment with her neurologist on Thursday and it went as expected. First I just have to say again that I absolutely LOVE her Dr. (maybe a little too much. haha). He showed us her MRI and it was pretty cool to see how many tiny little folds are in her cerebellum. So it is abnormal, but she is the first documented person with this abnormality, which means... we know nothing (I'm getting used to this). He said that he is not concerned because she is developing so well and even a little advanced in some milestones. He is convinced that her brain abnormalities are genetically related and spoke with the geneticist (we meet with her on Wednesday). So the game plan is to just love her, help her grow, reach milestones, and remain seizure free. If she continues to be seizure free, (which I have no reason to believe that she will have another seizure) then when she is a year he will take her off of the last remaining medication!!!! GREAT NEWS! There is still a chance that once the medication is out of her system she will have a seizure and will need to continue it for the remainder of her life, but that is a risk we are willing to take. Pretty much all seizure medications are hard on the liver and being on them long term is not something you want if you don't actually need to be. Anyway...Great news this week!
And not to leave Hyrum out... He is talking more and more and it is sooooo cute. Some of my favoriet words of his are, "Buppy"- Cup, "Sesss"- Sister, "Ass"- Ice, "Woot"- Food, he also say Joseph, hungry, and a whole lot more but I have no idea how to spell the way they sound. Haha. He is a little prankster, always giggling and trying to make others laugh (often getting himself into trouble). He is such a joy!



Thanks for the updates on the babies. I sure enjoy them. Sad, happy, excited and awestruck all at the same time.
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